Public Engagement
Explaining data flow
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Joined Up Yorkshire and Humber Report - Feb 2021
This report describes research with the public to explore acceptability and to co-design explanations of how data flows in the Yorkshire and Humber Care Record (YHCR) and Population Health Management (PHM) Platform.
Explaining-data-flow-in-the-Yorkshire-and-Humber-Care-Record-1.pdf
Exploring Population Health Management
Joined Up Yorkshire & Humber
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Joined Up Yorkshire and Humber Report 2020 - PHM explanations
An independent report by Brainbox Research which worked with people in Yorkshire and the Humber to co-design and test explanations for Population Health Management, data security and safety concepts.
Joined-Up-Yorkshire-Humber-PHM-Report-2020-Brainbox-Research.pdf
Youthwatch
Youthwatch in Leeds have created this film which unpicks the language we use around explaining data sharing with the health and care system. Thank you to all involved.
Exploring people's beliefs in how health and care records could and should be used
Joined Up Yorkshire and Humber
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Joined Up Yorkshire and Humber Report 2018
This report summarises insight research commissioned to inform the Yorkshire and Humber Care Record. It aims to explore the beliefs that people have about how their health and care records could and should be used, their boundaries for what they are willing for their data to be used for, their concerns around how their data could be used, and the reassurances they want about how their data is safe.
